Business Details
27 Years
experience
Your Trusted Partner for Rheumatic Disease Research Solutions
Arthritis Research Center is the largest patient-reported research databank for rheumatic disorders in the United States, dedicated to advancing knowledge about the causes, outcomes, treatments, and results of treatments related to rheumatic conditions. Since our inception in 1999, we have built a comprehensive database spanning dozens of autoimmune conditions, collaborating with researchers worldwide to improve patient care and outcomes. Our mission focuses on human connection and deep insight to drive discovery in rheumatology and beyond. We collect data directly from individuals with rheumatic disorders through biannual questionnaires, enabling longitudinal studies that inform medical understanding and treatment strategies. Our research interests include treatment efficacy, social medicine, work disability, and the broader consequences of illness.We make our data available to qualified investigators globally, fostering innovation and accelerating solutions for patients. Our peer-reviewed publications and presentations at major scientific conferences like the American College of Rheumatology and European League Against Rheumatism underscore our commitment to advancing medical knowledge. We invite participation from patients, physicians, and researchers to expand our databank and contribute to groundbreaking studies. Our work has demonstrated that registry participation correlates with improved patient longevity, reinforcing our belief in the transformative power of shared health experiences. Through partnerships and patient-centric research, we strive to find cures and improve quality of life for those affected by rheumatic diseases.
Services
Rheumatic Disease Research
Patient Data Collection
Autoimmune Disease Registries
Collaborative Research Partnerships
Longitudinal Observation Studies
Treatment Outcome Analysis
Peer-Reviewed Publications
Data Sharing with Researchers
Patient Enrollment Services
Disease-Specific Studies
Details
- Year established: 1999
Highlights and features
- We have over 30 years of experience in rheumatic disease research.
- Our databank includes tens of thousands of participants across dozens of autoimmune conditions.
- We collaborate with researchers worldwide and publish in peer-reviewed journals.
- We provide data to qualified investigators to advance medical understanding.
- Our research has been ongoing since 1999, contributing to improved patient outcomes.
Services
Rheumatic Disease Research
Our rheumatic disease research focuses on collecting and analyzing patient-reported data to advance understanding of conditions like rheumatoid arthritis, lupus, and psoriatic arthritis. We conduct longitudinal studies to evaluate treatment efficacy, disease progression, and quality-of-life outcomes. Our work informs clinical guidelines and improves patient care through evidence-based insights shared with the global medical community.
Autoimmune Disease Registries
We maintain comprehensive autoimmune disease registries that track patient experiences and treatment outcomes across conditions like lupus, Dupuytren's disease, and spondyloarthritis. These registries enable researchers to identify trends, risk factors, and effective therapies. By aggregating real-world data, we support drug development and clinical decision-making to improve patient management.
Collaborative Research Partnerships
We partner with academic institutions, pharmaceutical companies, and patient advocacy groups to expand research opportunities and accelerate discoveries. Our collaborations provide access to de-identified patient data and specialized analytical tools. These partnerships drive innovation in treatment strategies and enhance understanding of rheumatic disease epidemiology and outcomes.
Patient Data Collection
We collect detailed patient-reported data through biannual questionnaires covering disease activity, treatments, and quality-of-life metrics. This data includes clinical assessments, medication use, and comorbidities to support comprehensive analysis. Our secure data collection methods ensure accuracy and confidentiality while enabling large-scale studies to inform medical practice.
Longitudinal Observation Studies
Our longitudinal observation studies track patient outcomes over time to evaluate the real-world effectiveness of treatments and disease management strategies. These studies provide insights into long-term risks, such as cardiovascular complications in psoriasis patients. By following participants for years, we contribute critical data to improve clinical care and public health policies.
Questions
What is FORWARD's primary mission?
FORWARD's mission is to advance rheumatic disease research by collecting patient-reported data to improve understanding, treatment, and outcomes for conditions like arthritis, lupus, and psoriasis.
How can patients participate in FORWARD studies?
Patients can join FORWARD by completing enrollment forms through their healthcare providers or online, then submitting biannual health questionnaires to contribute to ongoing research.
What types of conditions does FORWARD study?
FORWARD researches rheumatic disorders including rheumatoid arthritis, lupus, psoriatic arthritis, Dupuytren's disease, spondyloarthritis, and other autoimmune conditions affecting joints and connective tissues.
Does FORWARD collaborate with other research organizations?
Yes, FORWARD partners with academic institutions, pharmaceutical companies, and patient advocacy groups globally to share data and accelerate discoveries in rheumatic disease treatment.
How is patient data used in FORWARD research?
Patient data informs studies on treatment efficacy, disease progression, and quality-of-life impacts, supporting evidence-based clinical decisions and drug development for rheumatic conditions.
How long has FORWARD been conducting research?
FORWARD has conducted rheumatic disease research since 1999, maintaining one of the largest patient-reported data repositories in the United States for over 25 years.
